Posts tagged chronic
Seven Steps To Advocate For Your Health

Ever feel like an aggressive driver? Chalk it up to years living in Los Angeles. In LA, if you don’t drive fast enough, if you don’t run the yellow, and if you don’t get out of the way you WILL get the bird from other drivers. Or dangerously cut off. So I prefer to think of myself as an assertive driver. 

I also like to think of myself as an assertive person - especially when it comes to health. After years as a nurse and a patient, I’ve seen both sides of the curtain. As a nurse, I really need my clients' honesty so I can see the full picture. And as a patient, I really need my healthcare providers to answer my questions so I can make the best decisions for my health. This is where partnership comes in. 

In my moments of weakness, I tell myself: To learn the answer you have to ask. To ask you have to speak. To speak to someone you got to get the damn doctor on the phone.

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My Resilience: Resourcefulness + Grace

Modifying how I do things is the difference between actually doing it verses not doing it. Modifying acknowledges the barrier, but then allows me to pivot to a more advantageous position. 

Modifying takes back control from chronic pain and fatigue. 

It says I can’t do much, but I can do something.

Doing something is the start of lifestyle change.

Lifestyle change is adaptability.

Adaptability is strength. 

Strength is resilience. 

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Real Talk: Depression, Autoimmune Disease, and Infection

It’s no mystery that individuals with chronic diseases are at higher risk for depression. Who’s mood doesn’t drop when confined to a bed or coughing up a lung?

Battling my autoimmune condition is also battling my mood. My mood is intrinsically (and maybe biologically) linked to the flares of my Rheumatoid Arthritis. I once read a meme that said something like, half of the time I’m trying to convince others of my autoimmune condition and the other half of the time I’m pretending like it doesn’t exist. It’s like this: on one hand, people tend to think I look young and healthy, like I don’t have serious health problems, when in fact I do. On the other hand, I’m trying to look (and feel!) young and healthy, like I don’t have serious health problems, even though I do.

Today I feel the tension and frustration acutely.

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